ADPKD (Autosomal Dominant PKD), one form of PKD, often doesn’t present itself until adulthood, and so parents can unknowingly pass down the disease to their own children, which can cause significant anxiety and guilt.
In ARPKD (Autosomal Recessive PKD), families have to cope with the shock of a child born with a potentially life-limiting disease.
PKD can have a massive emotional and physical burden on people every day, negatively affecting families, relationships and social lives as well as causing persistent and debilitating pain.
For someone living with ADPKD their kidneys can swell to four times their healthy size and weigh up to 100 times more, which can cause their stomach to expand. This can lead to a debilitating life of fatigue, long-term pain and kidney failure.