Privacy Policy

PKD International (PKDI) respects the privacy of everyone who visits

Information provided will be held securely in strict accordance with relevant European Union Data Protection Directives.

Personal information

PKDI will not hold personal information longer than necessary and will never publish information or images without consent from those concerned.

Personal information may be disclosed to a third party company or organisation to which we pass the responsibility to handle email or other direct marketing communications. We ensure that third party companies are registered and comply with the relevant data protection legislation.

PKDI will not further disclose personally identifiable information without your permission unless legally entitled or required to do so (for example, if required to do so by legal process or for the purposes of prevention of fraud or other crime).

You can at any time remove your consent to PKDI’s use of your personal data. You can also contact us at any time to review or change the information you have supplied to us. You need to email us at and pay required fee to us to cover our costs.

Use of cookies

Cookies are text and numbers created by websites and stored on your computer when you visit websites. They do not collect or contain personal information and poses no security or virus risk to your computer. Cookies associate your computer with the information given when first visited or registered. Most web browsers allow some control of cookies through browser settings. To find out more about cookies visit

Third party websites

PKDI is not responsible for the privacy policies and practices of other websites accessed through links from; PKDI recommend you check the policy of each site you visit.

Social Wall

By submitting Information to the social wall in the form of images or video files you are granting permission for us to use, edit, modify, copy, distribute, transmit, publicly display, publicly perform, reproduce, publish or transfer any such Information and to allow others to do the same.

We reserve the right to remove or to edit any Information or materials or block your access to at our sole discretion and without notice; and/or disclose any information as required by law; and/or take such other action as may be reasonably necessary to prevent any breach of these terms and conditions or any breach of applicable law or regulation.

PKDI may change this policy at any time in line with legislative changes. Please check to ensure you are aware of any changes.

PKD International, 24 Rue Le-Royer, 1227 Geneva, Switzerland.

PKD International is a global network of patient organisations dedicated to advocating for patients and families affected by all forms of Polycystic Kidney Disease (PKD). PKD International is a non-profit, non-governmental association registered in Geneva, Switzerland.